The Ovarian Cancer Project aims to build a comprehensive resource for people struggling with ovarian cancer, their families, and those who support them.
We’re learning more about the science of cancer every day. But medical breakthroughs aren’t the only thing we’ll need to make progress against this disease. Patients and their families long for a way to make sense of all the new information available, fitting it all into a model that helps them face cancer with knowledge and dignity.
The Ovarian Cancer Project seeks to create just such a resource for this specific form of the disease. This resource will help people struggling with ovarian cancer understand where they are in the process, what to expect, and how to make the best possible decisions for themselves and their families.
We anticipate that the design of this resource will take several years — we are considering all possible forms of media and are incorporating design insights from many different fields. But no matter what form the resource takes, we are determined that it must be grounded in patients’ lived experience.
In 2016 and 2017, we held gatherings across the country to gain new insights into the experience of women and transgender men with ovarian cancer. We worked with cancer care and support institutions to convene groups of current patients, survivors, caregivers, family members, medical personnel, and other people whose stories are essential to understanding ovarian cancer.
We're currently considering how the insights gained from these sessions will inform the design process for our new resource. But we're also sharing some of what we learned here so our research can begin to benefit the ovarian cancer community today. Click here to learn more about our process. Click here to read a sampling of the insights into the social norms of ovarian cancer being identified by the social innovation experts at GreenHouse, as well as the critical questions they raise for the resources's design.